The child is now an adult, well in the eyes of the State, anyway. Of course, chances are that this "adult" will always be a child, emotionally, but unfortunately, his needs now encompass both those of a child and those of an adult.
At this point, four days after his birthday, I'm extremely busy with all these must-be-done-now issues:
- Crisis tool - pending (for four months and counting) at APD for more behavioral help
- PCA - getting the right person hired by CDC+ to work with Noah on the weekends
- Social Security - getting him declared disabled
- Guardianship - getting paperwork filed, and everything that entails, to declare me his guardian
- School - he's going to be a senior next year (yipes!) have to work with IEP team on his schedule
What will he do when the yellow bus no longer comes to the door in the morning?
Where will he live?
Who will take care of him if/when something happens to me?
And the biggest conundrum of all:
How will his future be impacted by the simple, inescapable fact that there's no money ? No trust fund, no life insurance policy, no savings, no assets of any kind except for a house encumbered twice over and whose value keeps dropping?
Noah's sibling will most likely not be a presence in his life as they both age. And I am aging at astronomical speed. Not much time...
1 comment:
I honestly can't believe Noah is 18 years old and what that means for you, as far as the list of things that need to get accomplished. You are an amazingly strong, loving & caring woman. I admire you as a friend and I love your passion for bringing awareness to what life with an autistic child/adult actually looks and feels like. You are a blessing to many, including me.
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